Miracle Baby Born With Organs On The Outside Of Her Body
Clare, 26, and her husband Dane Rowe, 27, had been trying for a year to get pregnant. When they were finally informed they were expecting a baby, they had no idea of the horror lying in wait. “They told me she wasn’t compatible for life, I can only describe it as heartbreak,” Clare recalls the moment they received the bad news.
She went on to say, “I’m not one to play God but knowing she would have birth defects didn’t make me love her any less.”
Clare was determined to do all she could to help her child survive, saying “I knew I wanted to fight for her.”
Her love and resilience paid off. On the 28th of July, 2016 Azalea proved everybody wrong.
Here’s a picture of Azalea meeting her parents for the first time.
Azalea was diagnosed with a very rare condition. This caused a majority of her vital organs to develop on the outside of her body.
Her bowel, liver, stomach and gall bladder actually developed inside the umbilical cord. This caused her abdominal muscles to form improperly. The condition is a birth defect known as omphalocele.
However, there was a second facet of Azalea’s defect that worried Clare.
Azalea’s organs were developing in a very thin membrane. This meant that her parents were not able to hold her. Any skin-to-skin contact was expressly forbidden.
Additionally, they also had to endure watching their baby go hungry. “We weren’t allowed to feed her for her first four days,” said Clare. This was because feeding Azalea would break the thin membrane protecting her organs.
Azalea had to be laid on her back and closely monitored for just over four months.
This meant that many of the nutrients she needed had to be injected directly into her stomach.
Clare stayed by Azalea’s side for the whole time until the membrane protecting her organs was strong enough for the baby to be taken home.
The new parents also had to learn how to properly care for the medicinal dressings on their baby’s abdomen.
Eventually, Azalea got healthier to the point that her parents could finally hold her!
Here she is with her dad.
The wonderful baby has come a long way since then. Although her organs were still outside of her body, she was healthy enough to go home.
This is Azalea now!
Azalea is growing at a healthy rate. “Every time I see her do something new I want to take her back to the hospital and say ‘Look! She is compatible with life’,” says Clare.
Just recently, Azalea ate solid food for the first time ever!
Continue to the next page to see the rest of her cute pictures.
This beautiful baby is loving life. As time passes, her organs will start moving to their natural place inside her body.
Until that process is complete, she gets regular house visits from the doctor.
Clare is telling her baby’s amazing story to spread awareness for World Omphalocele Awareness Day, which is on January 31.
Azalea is due to have just one more surgery. This will be to make sure all of her organs are well inside her body.
We wish Azalea a quick and happy recovery!
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